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blog 80: Purple day 2018
People with epilepsy are in danger of having no where to turn when they need expert and often life changing support …. Half the calls to Epilepsy Action are missed due to lack of funding and increased...
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blog 81: happy 3rd birthday noah
To my darling boy, the one who stole my heart, And boy have you stolen my heart. I loved you as a baby, you were so tiny and fragile, but now I fall in love with you a little bit more every day for...
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blog 82 - Women with epilepsy: Picnic in the park
Saturday 14th July saw myself and Noah heading down to the Olympic Park for the Women with Epilepsy Picnic in the park. It has been organised by Kim Morley and Epilepsy Action. I was hesitant about...
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blog 83: When it goes right - a fitting farewell
Sunday saw me take on Royal Parks Half Marathon for the second time. I would love to say my come back at Royal Parks was a fairytale sunny day, it couldn’t have been further from the truth; the skies...
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blog 84: sudep action day - time to act
SUDEP (Sudden Unexpected Death in Epilepsy) is one of them things, no one wants to think about it, no one wants to believe it happens and nobody believes it will happen to someone they love, that is...
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blog 85: Home telemetry
Crazy hair when finished! I am very late to write this but it has taken me a while to be brave enough to share the photos and experience, but as I always said I’d be honest - I guessed it was time to...
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blog 86: Epilepsy, anxiety, ptsd & me
I have tried to write this so many times, in so many ways over the last few weeks, but what has ended up on the page has been a total jumble. In many ways it is a very clear reflection of my mind when...
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Blog 87: 365 days (Purple Day 2019)
A whole year seizure free, 365 days. This isn't the blog I wrote originally, this isn't the post I agonised over for days. This is the post written on my phone laying in a hotel bed the night before...
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Blog 88: Searching for a stranger
We so often teach children about stranger danger but how often do we ever touch on the fact that someone you don't know, someone you may never set eyes on again could end up having the biggest impact...
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Blog 89: Cameron Boyce: SUDEP thrust into limelight
Cameron Boyce, not a name that met anything to me and when news of his death broke on 20th July I was so caught up in my grief for my own Mum that I didn’t bat an eyelid. That was until the family...
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Blog 90: Sudep action day 2019
#5forepilepsysafety This year the message for SUDEP Action Day is a simple one. Take 5. Whether that be five minutes to educate yourself about SUDEP, five minutes to share information online, five...
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Blog 91: I feel funny
Epilepsy is a funny thing isn't it. You think you have got to grips with it, you think you have it sussed and then it finds a way to remind you you're not in control - and that is forever the...
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blog 92: sudep action day 2020: #SpeakUpToSaveLives
#SpeakUpToSaveLives I love this theme for this year's SUDEP Action Day. I have been thinking about it for a few weeks whilst thinking about putting pen to paper, but what surprised me was it made me...
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